mÄ vI3 n’3sT P@S l@ Ti3Nne!!

did you hear the new album of Najoua Bielzel??? I love it!!! and ”ma vie n’est pas la tienne” (My life isn’t yours) is a song fron her new album ”au feminin”. U should hear it.

Well, I was watching TV and suddenly I was remembering an appointment that I had a few years ago with somekind of doctor, in a big city, ya know, 6 millions of people  livin there. Anyway, when I was waiting, there were other kids like me, but worser.

Inside, they were kids without hair, other with the skin like burned or something like that, and me. I was totally fine, well, my skin was full of bruises and that´s better than have no hair, or have my skin burned. Suddenly I feel sooo healthy. 0_O.

But anyway, some people doesn´t realize how lucky they are;  like me, I didn´t  noticed it until I saw those kids, and other people doesn´t notice it until they hear our story.

Until next time

wHaT LiF3 iS aBoUt??? w0nDêRiNg….

Im sooo sorry of not writing before, but nothing really important happened,  ahhh, and i have some examns coming soon, but who cares??? 

Weell, today i saw some pictures of my friend in La France. Totally cool, kick-ass school.

I wanna be there now!!!!! But  first, my parents , u know, they treat me like the most frágil thing in the universe, like of i touch a rock, lets run to the hospital!!!!

So the odds of spend a year in Europe are….. ??? …. Ah , no , is impossible, im not going anywhere in anytime.. :’(

Ughhh , i have to go

see ya later!!

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.,.,.,..,.,..,.,.,.,.,..,.,.,..,.,.,..,.,..,.,.,.,.,..,..,.,.,.,.,..,.,.,..,.,,..,

hehe, sorry, i had to go to do something

So, amm, i was writing something aboutttt Europe?? Yeah

Oh, and i wanna spend a year there, but noopi. My cousins are really lucky. They can go to study , but one of them cant go cause is really shy and afraid. But in fact shes really cool. I remeber that she had a little bear called Teddy ( the most original name evah!!) but a long time ago….

That isn’t embarrasing……………at all. I have a bear called Nuez. Of course that i can sleep without it, but i have a whole collection of teddy bears, like 30 in my room. Incluiding Nuez and a koala bear.

Dont ask how did i find space for them … hehehe, you should see my room, full of bears and  fluffy animals. But who cares???? Since i was 4 , i liked more fluffly animals than barbies and bratz. I still . I prefered them .

THey are soft, esponjositos, in the night they keep you warm and you can used like a pillow. They are soooo cute!!!

I have a secret to tell:  ( not the  secret about than im syringephobic   )  . when im scared about something that are gonna give me, like and inyection or a wierd medicine, i run to my room and i hug him. Yep. I hug him and sometimes i cry. Dont worry, Nuez drink all my tears.

But if i need a bigger hug, then i hug my huge winnie pooh bear. you feel better when he hugs you!!!

WOW, finally i said it. I was living with that secret all my life.  hehehe, but its a secret , shhhh!!!  xD                                                        

mmmm, im hungry, :p, but i’ll eat later..

Well, Nuez is a bear with a (ObvIoUsLy with a nut color!  dah), is really cute, with big brown eyes and is really soft, but i think he is with a diet, he needs to be fatter :s

And Sidney is his partner. Is from Build a Bear, is a koala with a pink jacket and a flower, I bought him with sound, so actualy he can talk.

Believe, buy a cute soft bear, and if you have problems with ITP or whatever, a hug form them will cheer you up!! SERIOUSLY……….

Hold on, the title of this is What life is about?? ……..Ok, well, another post with the wrong title, agh, im not gonna change it.

SEPTEMBER 11th – TWIN TOWERS ARE ATTACKED

TAKE 2 MINUTES FROM YOUR LIFE OF SILENCE IN HONOR OF WHO DIED AND WHO SURVIVED THAT DESTROY WHOLE FAMILIES, INCLUDING KIDS , TEENS, WORKERS, PEOPLE WHO WAS AT THE WRONG PLACE AND TIME

Ahhhhh im back!!!

sorry again, ive been talking to a girl, she had been asking me a lot of questions of ITP, by other way no more flu!!! ;D

But bad news: my nose’s bleeding. Yep , that isnt Ok. I mean, im not bleeding like the half of my blood, no,     im bleeding but the last platelets are doin their job, so i have dry blood on my nose, :) no one will notice isnt comfortable … it itches

So, im sorry for not writing before

this morning my nose was bleedin and i had to put my head back, so the platelets will have time to coagulate. Just 10 min. before school, i could stand up and put my head up.

I cant imagine if i had to go to school with a kleenex full of blood :s :s :s  ughghh too nasty puaj

Oh ,a nd i accidentally spread the flu to my friends , :s almost a quarter of them :s

But i still have some cough , but without petechiae (the red points), and again i cant breath normal

Oh and an european guy is new at school, hes so handsome but, hes a jackass. u know, that kind of guys who have a little brain, too tiny.

Seriously, is handsome,soo handsome, but amm, no , maybe not.

Immm sickkkk..

Im sorry, i didnt write before cause i have flu ( NOT THE SWINE FLU) well, here almost everyone had it jjeje, my sister was sick of that too.

And i have lots of homework and i couldnt write before, and my spleen is so dumb, i have red points at my throat, soo, achh my spleen is blind. But my throat is ok .

Sorry about those days i didnt write.  :p

eYEs t3LL eVeRyThInG…

hey i noticed that my eyes has a lot of ”scars”

not like a big scar is at my eye, no 0_O, is that my eyes, the white thing , has some black points, and arterias , anyway i have good news !!! ( nop, my platelets didnt change)

Now im part of PSDA and ITP organization at Facebook,and  is soo cool

I couldnt imagine how much people are involved with this. They look normal, healthy people.

But i noticed too many girls , more girls than boys  ( why?????)  but seroulsy thk u too all the people who are involved with ITP. I dont feel so lonely right now ^.^ .

oh and yeah, and my eyes have some kind of scars  or bruises, but i dont think so. That is why i dont look to people to the eyes all the time, i dont wanna show them full of ”bruises” . And im shy.

D-O-M-O!!!

wE ArE hUmAns JaCkaSs DiScRimInAtOrs!!

Hi ! 2 day i remebered that years ago we were at my doctors office and in tha play room i was at the kids room, u know, the room with toys , where you are if you are waiting and if you were a kid.

Well, anyway i noticed a girl, like the others, she touched the things before she could picked them up, and the other kids were playing with her with some fisher price things.

But i noticed too that her eyes wasnt concentrated at a point, when she was looking at the table obvioulsy u could see her eyes fine, but i realized that she was blind.

0_O in  a bad ay i was thinking soo excited ” is the first blind person that i know!!” ( hehe, i dont like that with me, i HATE when people say: OMG you are soo unlucky!! omg im sorry!!   so im sorry little girl <:)  im not going to say that again with someone)

I HATE THAT!! if you want to say that, say it to a dog, a cat a fish, but NOT ME, dont provoke me……….ever………even in your dreams, or in your mind, or if you write it, NOT WITH ME!!

Ok , but the point (. ) is that dont discriminate people, i dont discriminate people, maybe i dont like someone cause shes too mean, yadda yadda, but i try to not discriminate people with disabilities,

Dont do something to someone if you dont like it for you,

And i ant to have a friend like that, with some kind of disability, is not to say ”Im better than you hehehe” NO !!

NOTE: Cool and positive People with a disability are the best friends that u could ever have and  u could learn loads of things about him/her.

And i wanna try something, near of my house, there is a Louis Braille School, is really close, i hope i could meet someone cool , blind or not, i dont care, (s) hes still a person

Includes gays!! XD ( i dont have gays friends lukily, my parents would get really angry :s)

wHeN aLl hOpe’S g0nE, m0vE Al0nG …

Now (again ) im gonna write something different, but this time isnt a memory, or an entire day with ITP,

Can u guess???

 

 

 

 

 

  

 

yEP thats right!!

People with disbilities!!

Well, isnt about ITP , about us,

We are totally different, two different worlds:    we have a disorder at the blood,   and they have a disability or disabilitIES!!                                                                                                                                                                                                                          But the point is, ITP is bad , u know, a lot of treatments, doctors, vitamin C, and being careful , but isnt the worst thing of the world,- ”OMG Im a disaster with ITP, i wanna die, it can be worst, i cant live my life right!! why me, WhYY??     bla bla bla, etc”-

But what about them??? isnt impossible to cure ITP, and have new platelets,and almost all the time when a doctor remove your spleen instantly ITP dissapears, i mean is treatable

 but can they have a new leg?? like the old one???

Can u cure Parkinson??? Or recover the movement of all your body???   Or deafness??

All that disabilities , almost all of them u can have a treatment, but NOT  a cure.                                ITP doesnt have an exactly cure, like ”hey take this pill, is the cure for ITP”

They doesnt have any posibilities to recover his old life, and we do!!

 

Think twice before thinking your life sucks.

wH0 sAid ”sPle3n Out”? gotta be kiddin me …

Isnt a law or a rule that u must have your spleen out of u , is it??? nop, i cant believe that people try that as the ”only” solution for that!

Heyy, what about treatments??? isnt a bad idea ,or try pills., they arent painful .

 A SECRET: i use pills 2 controll bleedings :s and im just fine,weell, maybe the stupid things that i do aren’t fine, but is my fault <:s

U know , i miss a friend from french class, hes right now at France , i feel wierd without him.. :d hes sooo funny, and he treats me like a normal person, like a girl like the others, that is what i like the most, and sushi.

But anyway, they arent goin to leave me without my spleen, just because they want to, i want my spleen just likeeeeeee emm my friends,  yeah, and im not goin to give blood for a blood test, OMG i forget the name, emmm the test they use to count your blood , whatever, im toooo afraid of sharped things 0_O :s

Oh yeah, one last thing, if u want to ask something but ITP questions( REMEMBER: google has the answer 0.O) u can ask it, i might answer it! u can email me too, i’ll love to have friends with ITP :) even if u are japanese, i dont care where are u from, just email me!!

j3 FeRm3 LeS yEuX, oUi

is a good song, u should hear it! is a french song , the singer is najoua Bielzel , and she sings another songs, like La Bienvenue .

Well, first day of school and lukily my friends didnt notice the little bruise-town that i have near of my knee and oh , yesterday here in my town, it rained soo much,i think the whole ocean and near of my door , i fell down and my ribs hit the floor, but i dont understand why i didnt broke my ribs , one theory is that the last days i have eaten calcium for fun ( seeriously , just for fun    )

and sorry for the english , the first day of school and i have pounds and pounds of homework( WHO WAS THE JACKASS WHO INVENTED THATT???) and im wirting here , and then homework, here and then homework, oh and just before school accidentally ( always by accident) the door hit my finger,and the bruise is red-purple , so is a small one

L o o k :

BLUE OR GREEN                                                                                                                                                                                                                    it was serious , and needs time to disappear and if you touch it and you feel the bruise like a little mountain and it hurts, yeah, it was REALLY serious, a train hit you or u fell down from the Everest

 

 

PURPLE- naaah , isnt the big deal, is going to turn red and then , pooof!!, the bruise is goin 2 disappear; this color is the bruise’s finals days

 

RED- ^^ is goin to disappear and  well, u can feel pain , but not like when is green or blue